What Does It Feel Like Being Autistic ?

This is a question which every parent would want to know about his child. What does it feel like being autistic?

My son, John did not speak until the age of 3. He only knew the words, Mama, and autistic son and groom-453953_640Dada. When he wanted something, he will take my hand and point to the thing that he wanted me to get. It’s a bit frustrating to see that my beautiful little boy cannot speak a word except Mama and Dada. When he wanted our attention, he will bang his head on the wall out of frustration. He could not maintain an eye contact whenever I talked to him and seems pre-occupied on his own play.

When John turned 7 years old, he became focused and has a great attention to detail. I remember that he used to ask questions about the direction of the clouds. He will then tell me if it was moving or not and in what particular direction. He could see unusual street signs and if there was a possibility that it might rain just by looking at the clouds. He is very observant. Mental Maths is his strength. He could add three digit numbers by another three digit numbers with speed and accuracy. He likes converting hours to minutes and minutes to seconds. We could talk about these topics all day without him getting bored not unless it was not his area of interest. He likes routine and gets angry when there is a break in his routine. He always flaps his hand whenever he gets excited or happy and always repeat words for constant reassurance. He always giggles on his own when he remembered something funny that he had watched before. He takes things literally most of the time and does not know how to see social cues and gestures. He makes screeching and sometimes loud noises whenever he gets frustrated.

All these things were manifested when John was still little but mostly have disappeared now, that he is 17 years old. The only thing that he does until now is to giggle whenever he sees and remembers something funny. He still takes things literally at times.

As a parent, we need to understand why they are behaving in such a way so that we could better understand them. We have to put our world into their world. Sensory issues are their greatest enemies and they are trying to tell us that their senses are overloaded with what they see, hear and feel. It will be hard for them to cope unless we will give them our love and support. If you need some more information to better understand our role, please click this

Watch Temple Grandin talks about her experience being autistic, from not being able to speak when she was little until she became a renowned author and professor.

I sincerely hope these insights have helped in some way, and welcome your questions should there be any.
Adel 🙂

10 thoughts on “What Does It Feel Like Being Autistic ?

  1. What you’re doing is a very beautiful thing. Thank you so much for sharing your knowledge, your experiences, your heart. It personally enlightened me on how special their world is and that people ought to know how best to love and support them. I bookmarked your site so I could share your wonderful insights and practical ideas with friends and family who may benefit from them.

    1. Thank you, Cassia, for your kind words and for the support that you want to offer by referring family and friends who might benefit from my site. :

  2. Adel,

    I don’t know anyone who is autistic, however I’ve seen lots of movies where the main character is portrayed as autistic. It’s great that you are helping the world to become more aware of people with autism, I am aware that it is more common than we think.

    Keep writing.

    1. Hi, Theresa. The rain man is a perfect example. As you can see one of the main characters there is Raymond, who is autistic but is very good in solving complicated mathematical equations with speed and accuracy. They are savant in a particular area because their brain are wired in that area. This is my advocacy to help parents know how to help their child enhance his special ability in order to contribute to the world. Every autistic child has a special ability and we need to help them be able to share this into the world by raising autism public awareness and understading.

  3. Adel, Living with an autistic child certainly takes a lot of patience and understanding. All too often the problem for them is to be able to communicate how they feel.

    One day while waiting for my car at the shop I was watching a program about an autistic girl that was unable to talk. As she got older she would have a lot of moments where she was being overloaded and basically would have a “tantrum” whenever it would occur.

    However one day she went to her dad’s open laptop and typed help me. To the family’s amazement they were finally able to communicate with their daughter. It would take a long time and a lot of persistence but they managed to continue to work with her to learn how to use the laptop to fully communicate. It was a big help for their family and she was a beautiful girl that just needed a voice.

    I wish you all the best on your journey here and for those that have come by here because they have an autistic child in their family… have faith and be strong for that child. They need your help more than you could ever know.

    1. Thank you, James. That is an uplifting and inspiring story. It brought tears to my eyes for it had brought back the memories when my son was still a child. Severely autistic, non-verbal with lots of sensory issues and behavioural problems. I really don’t know where I found the strength because at that time my hubby hasn’t accepted that our son has autism. It’s really hard because I felt that I’m all alone to take care of him. It’s been a relief when he finally accepted that our son has autism when he found out of his progress since he started school. This was when he attended his school review. The teacher mentioned hard work and cooperation that I did to supplement his learning at home. I have been through a lot of struggles in raising him to be where he is now. He is now a teenager, learning his way towards independence and would be starting his work experience soon. Academically, he is a bright young lad who is gifted in Maths, IT and general knowledge. I’m very proud of him for he has given me strength and taught me how to appreciate the beauty of Life.

  4. I use to take my kids swimming in the complex’s pool many times, there was an autistic boy about 15 or so. My kids were 3 and 4 at the time, they had no problem in playing with or accepting the young lad and enjoying the water together. It was other parents who didn’t understand what autism is that felt nervous and over protective of there kids. I thank you for providing this site and hopefully educating people on what its like to have autism. We can learn a lot from the young children who do not judge but accept.

    1. Thank you, Cavan. Little children don’t have problems playing with autistic children even though their age might be far apart. It’s mostly adults and teenagers who have problems understanding autistic children or people in general. Some of them may not be aware but most of them do although they still find it hard to accept autism and always give my son an uncomfortable stare. We need to learn from children and accept the fact that we have to enter into their world in order to understand why autistic children behave the way they do.

  5. The fact that a lot of people are autistic might be looked at as ”tragic”. However, I think people like you contribute to making the ”problem” a lot easier to live with. It’s very nice of you to help other people and share what you know about this topic. Keep up the good work! Would love to see more in the future 🙂

    1. Thank you, Daniel. I created this site to help other parents who have problems in raising their child with autism. It would help them cope in a way that they won’t see autism as a “‘problem'” or “disability” that their child have but a special gift that if they only know how to help them through their love and support for their child could be enhanced and developed further into a talent. They just have to see and feel within their child, what their knowledge and skills are.

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